I was sent an e-mail from a friend that I thought was really a touching story. Until we had Conrad I looked at the world in a completely different way than I used to. Although we don't believe that Conrad has any mental disabilities he does have delays in other ways. He didn't start walking until he was over 2 years old and still doesn't really run he kinda just trots and he is also tube fed still.
He will eat a little by mouth now (when he is at school) but still not enough to sustain himself by any stretch of the means. It is so hard to answer some of the questions we are asked in regards to his eating like the most common one, When is he going to start eating? unfortunately no one can answer this question we will just have to wait until he is ready. The other famous question is, Why doesn't he eat? Well besides having an oral aversion we don't know this answer either.
Sometimes I feel like people think we have not tried hard enough or done the right things by their reactions. Although they are are not saying this sometimes I feel like that may be what they are thinking. Maybe I'm just thinking to much who knows.
We were at Wall mart today and Cj started retching and when he does this he starts gasping also and will sometimes spit out white foamy spit. (gross) Anyways, this woman gave me a nasty look then looked at him and asked if he was sick. NO!!! like I would take my sick kid shopping at wallmart. I realize that she was not aware of his situation but sometime I get tired of having to always explain it I suppose because I don't understand it myself sometimes.
I'm not sure why her reaction affected me so much because normally it doesn't bother me. Maybe I was just extra sensitive today.
Here is the e-mail address I hope it will work I tried to post it but couldn't figure out how to post the video. http://www.selfadvocacy.com/offensetaken
I suppose the point to my babbling is that we should never judge another person because we don't know where they have been nor do we know their situation.
Friday, October 17, 2008
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