Tuesday, September 23, 2008
Radiology Apointment
We had Conrad's appointment today with radiology and they just reran a test that we have already done. It's not really a swallow study but what they do is have him drink some juice with barrium (spelling?) while under an x-ray machine so they can watch what happens when he swallows. We were hoping the tests would help explaine why Cj wants to eat but he won't swallow his food, he just chews it up and spits it out. Unfortunatly the tests did not show us anything, except that he did have some minor refluxing but we knew that might happen when we loosened his fundo over the summer so we were glad that we chose not to loosen it more. Anyways I suppose it's back to the drawing board. We also chose not to have him scoped through the GI clinic and cancelled that appointment due to the fact the Dr. Ostile is not sure that there is anything that he could fix surgically. He did say that he would present his case this Friday during a meeting with other doctors to see if he could maybe get some suggestions on why he retches so bad when he has his tube feedings so maybe we can get some insight with that! if I hear of anything I will post.
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Kaden is having that problem. It was getting worse and worse. He hasn't had any studies done yet and since now he won't take hardly anything by mouth they won't be able to do a swallow study. He still does water but not every day and not very much at a time. They just put him back on a reflux med (per my request) to see if that would help some. It seems to have helped a little but he still continues to gag. It is very frustrating not only for us but for him as well (which you completely understand). I want them to find an answer to this and fix it!!! Well, I hope things are going well. I think Nate said something about the golf tournament being held in Onaga. I will have him call James if he hasn't already.
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