Today was CJ's turn for the parent teacher conferences and he is doing just great. He is also doing things we had no idea he could do, like eat!!! Boy does he have our number. Although he is still not eating much he is eating more and that is very exciting. I guess that at snack time he is eating almost all of his snack (if it is crunchy) and usually drinks his whole pint of milk or at least 2/3 of it, but at lunch they said he seems kind of lost (maybe too much food at once) so they are going to try giving him one kind of food and expecting him to finish what they give him during the lunch hour.
This got me to wondering why he does so well at snack but not at lunch time. And my conclusion was that he gets his tube feeding at 10am and it takes 45minutes to dose out his required amount, he would then usually eat again at 2pm but because I am not comfortable with the school feeding him we chose to move his 2pm to 3pm, after school is out.
Lunch is at 11:30am which he has just finished eating 45min prior to lunch so he is not hungry which would explain his disinterest and snack time is around 2:30 pm, 4.5 hours later so now he is hungry.Are you confused yet? I think I might be.
I wish there was some way that I could not feed him during the day and only feed him at night. I can't help but wonder if this would make a difference in the amount of food he ate. The problem with feeding him at night is bedwetting. He soaks through his pull ups now and if we fed him a full day’s amount at night then we are afraid that he won't sleep much. I don't know what to do! If someone has that book let me know because I need it.
I may try this theory out on the weekends when I can devote more of my time and we'll see if it makes a difference.
On the other hand he has mastered or is emerging at most everything and can take one step down stairs without support which is just awesome. His gross motor seems to be improving allot we are so proud of him. Keep up the good work Cj we are so proud of your accomplishments. We love you so much. XOXOXOXO
1 comment:
Just a thought: Can you try to not give him any formula in the morning (maybe just some water via g-tube so he doesn't get dehydrated) and see how well he eats lunch? Of course I would try it on the weekend so you can monitor it yourself. Then give him a snack and maybe some more water via g-tube, skip his next feeding and then do dinner? If you try it, I would definitely make sure that you give him plenty of water throughout the day. When Kaden was eating by mouth, I decreased the amount of formula he got but made sure I was still giving him plenty of fluids. I agree with you...he is probably not hungry at lunch time...and depending on when you eat dinner he may not be quite hungry then either. That would be awesome if he can start eating complete meals!!! We really need to start working with Kaden in the feeding clinic I think. His problem is that he can still only tolerate feeds at a slower pace...it takes about 1 1/2 hours to complete one feeding.
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