Well I know that I said I would explain more about CJ's upcoming surgery and then forgot so here it is.
This coming Friday CJ is going to have an esophageal monetary (spelling?) we were planning on doing this earlier in the year and after talking with his surgeon we decided not to go ahead with it due to the fact that if they are to find a complication that he was not sure that it could be fixed surgically.
Then last week GI called and said that they had spoke with the surgeon and they had decided that it wouldn't be a bad idea to go ahead with the surgery, and so it was scheduled.
The reason we wanted to have it done is because he wretches really bad every time he eats and it doesn't matter how slow it doses or on the amount he is getting. He is now also chewing food but will not swallow because he chokes on most everything so he just ends up spitting the food out (gross).
So here I go scheduling this surgery nervous about whether I'm doing this selfishly because I don't want to put him through something when there is no cure in the end. Then I think that what if I don't do this and there is a cure in the end, or maybe we will get enough knowledge in order to help him more.
The test they are going to perform are going to give us information on how his esophagus,stomach, and intestines process and digest food, or in his case liquids. He will go into the surgery room and of course be put to sleep then once asleep they will put a scope with a wire down his throat to the small intestine. They call this wire a motility wire and it does just that, check for motility. The wire has 8 ports that send fluid simultaneously to see if the sm. intestine is working properly by squeezing the ports in a specific order. I also believe that it checks the motility of the stomach and esophagus. He will wake up with this wire in place and will have to have it in for several hours, they will then perform several test and then back to the operating room to have it removed.
We already know that CJ has some reflux and that his stomach empties a little slow into the intestines but we were told that it was ok not to worry about it, but I can't help but feel like there is something that we are missing.
Needless to say it is going to be a long day for all of us especially for CJ. I already know that if there is no blockages that the only thing that may help if he does end up having motility problems is medicine. ( which they won't put him on without these studies) so once again I just hope that I am making the right decision by doing this, I can't help but second guess the procedure and whether or not we should even be doing this.
Please keep CJ in your prayers for Friday this will be out patient, so as long as no complications arise we should be home that same night.
Sunday, November 9, 2008
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2 comments:
First of all, I am glad that you guys had a great trip. Sounds like fun.
I know how you feel about Cj going in for surgery, that isn't a "must have" surgery. Kaden is having on done on the 8th of Dec. I am so nervous for Kaden...handing him off at this age. I don't know how he is going to handle it, but I can guess that it won't be well. I am intersted to find out the results of Cj's surgery. I agree with you...I feel like they are missing something with him, I also feel that they are missing something with Kaden on the same issue. It makes me frustrated when other's (mainly family) think that he is just being stubborn. I can't stress it enough to them that if he COULD eat he would, he's done it before. I don't know why it doesn't make sense to anyone else that he stopped eating after one of his surgeries and with that surgery he had is fundo repaired, I think it is related to that and I don't know why the doctors do not look into it further.
Anyway, I am sure that it is really scary for you...but I think you are doing what is best for him. He wants to eat, if he didn't he wouldn't put it in his mouth. I hope they figure it out for his sake.
I will keep him in my prayers. Call us and let us know how things go.
Hello, I came across your blog through Amy at Kaden and Angel Ava. I just want you to know that I will be praying for your little one and hopefully they can fix his problems.
My two year old has severe asthma, reflux, allergies, and he also aspirates when he eats and drinks. We had a swallow test done and saw where he swallows into his lungs which in return causes more asthma flare ups and respiratory illnesses. We just got our tonsil, adenoids out and ear tubes in. Pulmonary also took some samples of his lung fluids to be sent in to see if ther is something more going on.
So I completely understand your overwhelmed feelings. I really hope that you can find some answers.
Take care and I will check back to see how things went.
Kaci
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