Doctors Appointment

Good News. We went to see the CJ's doc on Monday the 20Th to see about stopping his tube feedings to see if it would encourage his eating, and he said that he thought that it was a great idea. We went over what he is now eating per g-tube and I told him that we planned on feeding him in the morning and at bedtime with nothing in between except a bolus of water periodically. He said it sounded as though we had a well thought out plan and that he probably won't need the water bolus on account that he will probably start also drinking more fluids so we won't have to worry about him dehydrating, he also reminded us how a normal 4 year old eats and to remember it is a weekly total of intake not a daily total.
I want to make sure that we can commit to CJ when we do this so we will not start until the first Saturday in May. That will give me 3 days to get started before I have to go back to work. We were also planning on offering CJ food all day whenever he would eat but the doc said that we would be better off keeping him on a regular normal kid schedule with 2 snacks in between meals and to also keep a food diary.
I am both excited and nervous at the same time. We will also be working with OT at Mercy and we have an appointment with them on Monday to also go over everything. The thought of him not gagging and retching anymore with his meals is so exciting. On mornings that we feed him late there is no retching when he wakes up, but when we feed him on his morning schedule he wakes up retching and will do this for about 45 min. it's horrible and it makes him feel horrible. Please keep CJ in your prayers that he has the strength to overcome the battle that is to come and that he will succeed with leaps and bounds.